I went to my Euro-Gyn today for the 3rd time. The last time I went he put a camera in my bladder (not recommended as past-time entertainment).
Today he told me I have Interstitial Cystitis. It's a non-curable disease of the bladder.
I also have Endometriosis in the bladder, as presumed.
So no wonder for all the pain!!
Now I have 3 more meds to add to my daily routine of medications. Not sure if I can afford them so it just may have to sit on the back burner along with my Acid Reflux meds. I'm pretty darn sure I'm getting an ulcer because of the untreated Reflux. The pain is getting more intense than I care to admit.
The bladder disease I have is incurable and will need to be operated on in the future. He told me they don't know what causes it or if it's inherent but that those who have Hypothyroidism and Endometriosis tend to get it, but not always, they're just linked somehow and they don't know how.
Pretty much my bladder can't hold as much as a normal persons, I'm more inclined to frequent infections and I can't go see my reg doc for those, I have to be tested via catheter YIPEEEEE!!!!!
The disease explains the pain I have, and it's pretty narly pain. Certain foods and drink aggravate it as well, and the list is kinda big of foods and drinks to avoid. Not sure if I'll be able to stick to that. A couple of the things on the list are lemons and tomatoes. I LOVE these two foods!!!
Anyway, I could go into detail on what this disease entails and what it's done to my bladder but instead I'll just provide a link for y'all to read yourselves.
He didn't remove the Endometriosis from my bladder because he said it wasn't necessary. It does cause pain so whatever.
Okay so click on the words above to see what they're about to understand me, k?
Also, another interesting thought. I'm really kinda grateful that Tyler's truck broke down when we were together and during the day because if not it would've broken down while Tyler was at work! That's in the middle of the night and his phone doesn't work. He'd be completely stranded and there wouldn't be a store open to help. It would've been BAD. So that was a blessing! It had to happen regardless, so thank God that it happened when and where it did!
Okay now back to "mothering" my sinus and ear infections and sore throat and aching belly
My Final Testimony
2 years ago
Hi Lisa:
ReplyDeleteSorry to hear about your diagnosis of IC.
I have had IC for 26 yrs. and today I am managing it.
I own a website called IC anonymous and if you would like to be part it and our group we would love to have you.
I am a nurse with a degree in whole health education who retired a year ago to travel with my husband and his job.
I decided to create this blog and the group to help woman and men who need support and guidance.
It can be a very difficult disease to live with and you will need tools to deal and cope.
If you would like to talk sometime via telphone and be part of the group email me at gp1965@ymailcom
gloria