Showing posts with label melanoma. Show all posts
Showing posts with label melanoma. Show all posts

Tuesday, June 16, 2009

Positive Update About Lacie

So here's the latest update about my Perfect Princess Lacie.
Her doc called me again today and told me that ALL of her test results came back and ALL of them were normal!!!!!!!
The HIGH white blood cell count is GONE. Can you believe it???
Here is why I sincerely believe it happened this way:
PRAYER, FAITH, MIRACLES.
Yep.
And that's thanks to all my good friends and family that did this for her! THANK YOU SO MUCH!!!
Seriously, the day after her blessing she got from her daddy, Tyler, and from her uncle, Glenn Pearson, she was better. Like 100% better!! No fever, strength, everything.
She doesn't have Diabetes or Celiac Disease, or Leukemia or Pneumonia or anything at all that she was tested for.
She has a little lingering cough, but even today I don't even think that was there if I can remember right.

Now, all we have to wait for are the results to her skin biopsy.
Those won't come in until NEXT WEEK. ACK!!! I HATE waiting!!! Seriously!!!
Melanoma on her head isn't a miner deal, ya know?

But perhaps there will be another miracle and she won't have that, either, eh?

So thanks again everybody and I'm feeling a lot happier about my Lacie-boo.

Friday, June 12, 2009

Update About Lacie

So it was like a miracle happened after Lacie got a blessing last night from her daddy and uncle Glenn Pearson. Today she hasn't had a fever, or at least not much of one anyway, and she hasn't shown that much that she's sick. I mean she still is, but she's MUCH better than yesterday! We were worried for her life yesterday and then today not so much.
We got test results back on two of the things we're worried about. She doesn't have Swine Flu or Pneumonia!!! So that's great news! She won't have to be hospitalized.
Now all we're waiting for are the tests for Diabetes, Celiac Disease, Melanoma, or possibly Leukemia and some other bacteria in her blood.
If her fever persists even a little we're supposed to bring her back on Monday to be tested again.
I feel a little more relieved today, but I am very, very worn out. All that's happened in the last several weeks has really taken it's tole on me. I'm pooped!!!
So we stayed away from everyone today and didn't have anyone over because the doc told us not to, and we still don't know everything she could have.
I do believe in Miracles and I believe there was one that happened here in our house with Lacie.
Now just another miracle that we won't be homeless next month and Tyler will have a job and we'll be able to take care of ourselves for a change! lol

Wednesday, June 10, 2009

And the winds keep on blowing (Poor Lacie!!)

There has been a lot more that has happened lately, and none of it has been good news. Okay ONE bit of good news. Tyler MIGHT have a job up in Layton working at the Hill Air Force Base making better money than he was with Gunther's Comfort Air. PLEASE PLEASE PRAY EARNESTLY THAT HE GETS THIS JOB!!!!!!!! Unless, of course, our Heavenly Father has other plans and sais NO.
Which has been his answer to every question we've asked so far ;)

So Tyler's cousin, Jake, passed away the week of Memorial Day. It was an awful and torturous week for us. Not just for Jake's sudden tragic and fatal condition, but the repercussions of hurt feelings forced back towards me. I cannot write about them here for fear of being sued or other such nonsense, so please just write me privately if you are curious.

The stress of Jake and his passing put Tyler and I physically ill. We had to have a bathroom close at hand. I'm still not better. I NEVER throw up but did so surprisingly one morning. No, it was no morning sickness, though I really sincerely wish it was.
Even my very honest Grandma Pearson noticed how dark under my eyes have gotten.
(bad grammar, I know, sorry).

So with our car being repossessed, no luck finding jobs for either of us (and YES we've applied at fast food joins, temporary jobs, everything!!!!!!!) and Tyler's truck being uninsured and the window breaking out and the fuel tank or pump breaking, among other things, and running out of food at the end of the month, every month..... okay I won't go on. It's just kinda pathetic and is just getting me more down to have to say it all. Let's just say that it's as low as it can get, or almost there anyway.

Our landlady served us an eviction letter to be out within 3 days. Out of desperation we called our bishop and asked if he could help. Thank you for our faithfulness in the Gospel because our entire rent was covered or we would honestly be in the homeless shelter in Provo. We actually went down there and met with a bishop of the place (not a religious person) and got the list of things we have to get together for next month when we will more than likely be evicted so that we can move in. That was enormous stress added to our heap of stress.

We have been sued FIVE TIMES now from doctors.
And my health isn't getting better. Sure you can think I'm some whiny person who asks for it or makes it up or whatever, but the fact of the matter is I have REAL issues and they've come to me in a very, very, very short amount of time!!! Why do you think I am so fat and look so awful?? DUH!!
Anybody who knew me, REALLY KNEW ME, would know that I was a very active, healthy, busy, hard-working and never-resting type of person. I was successful at everything I did. Nothing slowed me down. Not my endometriosis, breaking my leg, e-coli that nearly killed me, or anything. But when it's too much, IT'S TOO MUCH.
I feel like I am bearing more than I am able to and it's showing in so many ways.

My biggest concern is my family's well-being. I feel like a failure of a mother and Housewife. I want to be that housewife that can cook every meal and keep a schedule and a very clean house. I want to be that housewife that can teach her children the gospel and their school subjects. I want to be that housewife that has the energy to do normal things. But I am in constant pain and it is only getting worse.

ANYWAY!!!!!! Enough about me already!!!!!!

I am very deeply concerned about Lacie right now.
She's only 5 yrs old, almost 5 1/2. She's got to be one of the strongest and most perfect and special people I have ever known.
As a little background as to why I think this about her.
When she was born she would not cry. They tried and tried but she was 100% healthy and didn't want to cry. She looked at the nurses like "alright leave me alone, I'm just fine. Give me to my mother". As soon as I held her she just stared up into my eyes forever! She made eye contact with me and I knew right then that she was a very choice, strong and special spirit, older than I am, that God blessed me to be the mother of.
She never cried. She was the most perfect baby!!! It's been difficult to tell whenever she's sick or hurt because she won't complain about it. Not usually.
She suffered a severe seizure when she was just 2 years old. Perhaps some of you Pearson's will remember because it was the night of the Pearson Christmas reunion at uncle Kim's and aunt Marylou's. We stopped off at my inlaw's house. Anyway, she got her head slammed in a door and she already had a fever and it spiked. The impact, coupled with the spiked fever, sent her into a 45 minute seizure. She actually stopped breathing when I got to her! She was as limp as death when I held her and I panicked. I was pregnant with Sophie, due in mid-March. Lacie's little lips turned blue. Tyler called 911 and Tyler's dad, Gary, a previous EMT raced to her aid and saved her life. The Paramedics got there quickly but it still took them about 20-30 minutes since Saratoga Springs is so far from Lehi and American Fork. I rode with her in the ambulance. She re-gained consciousness in the ambulance but lay still.
In the hospital, as she lay in her bed and the entire family was in the ER gabbing away, Tyler and I saw her weakly sit up and point to a corner in the cieling and say "Jesus. Jesus" then lay back down.
She's broken both her arms and didn't cry. She's gotten two bad concussions and didn't cry. She won all baby pageants she's been in (except 1) and she's very gifted. She learns things usually the very first time it's taught to her with few exceptions.
Anyway, she's always been a very special and a very strong person.
Okay, now to get to what I really wrote this blog about!! lol
Lacie had a mole removed from her head in January. Over the last few years it'd been growing larger and larger and more recenlty started to bother her a little. I'd see her itching it.
The dermatologist said it didn't look good and sent in the mole he cut out to be biopsied. It came back as pre-cancerous and he was told to remove more of it if necessary (if he hadn't removed it all the first time, which he had). She had a check up in February and the mole had not healed. So he rescheduled again to have her seen just yesterday (actually it was Tuesday this week). He said it did not look good. It had not healed one bit since February!!! He was very concerned about this. He looked over the results again and decided that it would be the best thing to remove more. He took out 1 1/2" of her skin/flesh and gave her 9 stitches to close it back up!!!!!!!
He and the nurses said that Lacie was one of the best patients they have ever had. She didn't cry. She just laid perfectly still, with her eyes closed, patiently waiting for them to finish.
This is how Lacie is. Always has been.
So in two weeks roughly we'll find out if it is in fact Melanoma. I'm scared to death!!!!!!!

Then, to top it off. Today we took her in (Wednesday) to see her Pediatrician for her Kindergarten check up. Well, it wasn't good. Her doc is very concerned because Lacie's weight has been plummeting. It's completely dropped off the growth charts now! Her eye-sight has worsened, and her feet are worse.
From listening to her heart and looking her over and knowing about her broken bones and everything else the doctor was very worried and ordered a full blood test. They're testing for Leukemia, Celiac (what my mom has), diabetes (what my mom has), and any other types of cancer she could possibly have. Then we'll go from there.
Lacie eats. We feed her. But she doesn't have much of an appetite. She'll eat some food and fills up very quickly and loses her appetite. It's had me worried.
Her sleeping is sad, too. She grinds her teeth all night and moans and cries and calls for me in her sleep. She coughs all night, too. It really gets me worried sometimes, listening to her. I am constantly in her room checking on her for fear something bad has happened.
So in 3 days after getting her blood word done, which will be tomorrow (Thursday) morning, I'll know more answers, just not about the skin thing.

So every week there's been something happening.

It's just been too much. It really has! It's sucking all our strength out.
I'm tired of crying so much and tired of being so on the verge of tears all the time. I feel like a complete emotional wreck.
Tyler has had it.

What can you do when the problems you are having ARE NOT IN YOUR CONTROL AT ALL???? You cannot blame us for what we've been going through, period! Nothing could've stopped or prevented any of this from happening. At least the health issues. The financial issues are another issue all in themselves.
NO we have not been idiots with our money. We just don't have the same opportunities to money as most people we've known.

All we ask is that you keep us and especially Lacie in your prayers.
please pray for a MIRACLE.

Friday, February 27, 2009

Lacie had a mole... and my 2nd Sleep Study

Current mood: exhausted
So last night my Sleep Study SUCKED!!!
I could NOT sleep for the life of me! I got MAYBE 3 hours of sleep and woke up every 10 min during that time. Then at 3 am I woke up and stayed wide awake the rest of the night. They unhooked me at 5:30 instead of 6:30. Then, Tyler forgot to come pick me up and he had his stupid phone off! So I had to WALK HOME!! I was soooo mad! I got home freezing cold (walked in my PJ's!! in the 20's) and then unlocked the door and Sophie was sitting on the couch and Tyler was laying on the floor next to the portable heater (since our heater is broken). I didn't say one word to him cuz I was so mad. I got Sophie and carried her up to our bed and finally went to sleep at about 7:30 or 8:00 and slept until 10:30ish. I AM SOOOO TIRED!!!!
The CPAP machine helped my oxygen levels stay in the 90's except whenever I moved it would plummet. I have no idea why, either. Weird, huh?
It was nice having that air, though. It felt SO DIFFERENT being able to breath!! lol
I won't find out the restults of that for 5-7 days now, they said. So we'll just see. Man these medical bills are going to murder us!

Oh, we got sued again. The 3rd time now. This time from a medical billing collection. Lovely eh? Pisses us off! They don't give us a break! Tyler's hours got cut a LOT so yeah, there's no way to get around any of this. It sucks!

Anyway, about Lacie now.
She's had this mole on her head since she was a baby. It started really small and got bigger and bigger until it was as big or bigger than a pencil eraser, which we know is the size when it needs to be looked at. Tyler took her to the dermatologist this morning and just in the last while it's been growing irregularly and getting jagged edges and being sensitive. So the doc removed it and scraped it clean and put a liquid bandage on it. I'm glad he didn't have to shave any hair off. I was worried about that.
The doc said she was better than most adults are!! lol That's my Lacie!! He's going to have it biopsied cuz it concerned him. He said if it's positive for Carcinoma or Melanoma then they'll have to surgically go in and remove a chunk out of her head and sew it back up. YUCKY!!! Poor Lacie!! I hope it's not positive! But that mole was getting kinda scary looking and it concerned us that it irritated her whenever it was touched.

One more thing. Tonight Tyler and I get some time alone!!!! We're going to a Hotel in SLC and going to the dollar movies. I'm SO EXCITED!!!!!!!! We got some good deals and get to eat mostly for free. Then tomorrow we're going to Ashley Furniture, Guitar Center and the Cheesecake Factory. Yes we have people (family) watching the girls. Thank heavens for that!!
We have learned to NOT ask certain people to help watch the kids EVER AGAIN because they ALWAYS say no and blah blah blah. It's annoyed me a lot and really ticked Tyler off. So we have my inlaws taking them all day on Saturday (THANK YOU!!!!) and my brother and his wife and my other little brother coming over at night. So they'll be safe and well taken care of. I'm sure they'll miss us. I'm MORE sure Sophie will miss me!! That's why she was sitting on the couch this morning was cuz she was up most the night waiting for me to come home!!! How sad, eh??

Oh, when Tyler came home this morning from Lacie's appointment he surprised me with long stem red roses!!! And a Valentine's and Anniversary card. It was so sweet. He felt so bad for making me walk. I hope I can laugh about it later but right now I'm just too tired to be mad anymore or think it's funny, either.

Until next time, chau!!! Love ya!!